If you struggle with chronic migraine, you are probably familiar with the anxiety that can come along with the fear of attacks. In this post you'll learn how CBT for migraines can be an important component of healing.
Today’s guest post is from Kristi Ann DeName, a NYS licensed mental health counselor who is certified in biofeedback therapy and level-II trained in Eye-Movement and Desensitization Reprocessing (EMDR) therapy. She provides counseling for children, adolescents and adults, primarily focusing on trauma, stress-related issues, ADHD and anxiety. During these sessions she likes to incorporate play and art therapy techniques. Kristi is extra special because she does all of this while managing her own vestibular migraine disorder. I asked Kristi to share her view on therapy as a resource for anyone with migraine. If you’ve ever been interested in CBT for migraines, this is the post for you!
Chronic Migraine Can Alter Your View of Life
Migraine disorders change your life. They modify your identity, your lifestyle, your choices. The symptoms can cause not only physical pain, but emotional anguish, mental distress, and cognitive turmoil. It can feel impossible to recognize yourself while in the midst of your disorder. Mental health therapy plays a significant role in guiding you back into joy, peace, and into your life. I know this because, of course, I am a therapist-- but I am also diagnosed with my own beautiful vestibular migraine disorder (yay!).
Chronic migraine disorders don’t only alter how you relate to others, but also how you relate to yourself. You might feel isolated and misunderstood. A therapist can help you connect to your relationships again by encouraging you to communicate how you feel to others - and even teaching you how to express this. They can also get you comfortable with trying new things out with friends and family, while educating them about your illness.
- It’s normal to feel helpless and frustrated with the doctors who can’t give you answers, and bounce you around from one test or specialist to the next.
- It’s normal to feel crushed, relieved and hopeful when you finally do get a clear diagnosis.
- It’s normal to feel heartbroken when your loved ones become upset and discouraged as well.
Chronic Migraine Does Not Have to Define Your Identity
What did your life look like before? How did you identify yourself before your diagnosis? What can be kept? Modified? Transformed? Left behind?
You do not need to give up everything you had pre-diagnosis or symptoms. Certain tweaks, strategies and in some cases, major changes can help maintain your past normalcy in combination with your new normalcy.
A therapist can help facilitate these changes and provide tools for the anxiety and depression that might occur. In therapy, you can explore your new role, while figuring out how to not become limited in it. Some clients see themselves as “patient” only and become stuck. A therapist can help you identify unhelpful thought patterns that may fool you into seeing yourself as a victim. Therapy can also help unravel and extinguish limiting beliefs that get in the way of healing.
Your diagnosis or diagnoses do not define you. They can, however, demand a shift in your lifestyle to move forward. At first, you may feel extremely stubborn and afraid to do so. You might curse and struggle, and wonder how to do even the simplest things again, like getting out of bed.
To express these concerns, thoughts and fears fluidly to someone who will hear you and see you and offer compassion, empowerment and guidance, is enough to remind you you’re not alone. At the bare minimum, a therapist you connect with will offer that.
What to Expect in Therapy
During the first few sessions of therapy, the therapist will want to build rapport with you. This will allow for a therapeutic alliance built on trust and a chance to learn your history. They want to understand what has brought you to where you are now. After that, depending on his or her type of therapeutic approach, you will work on increasing your self-awareness and insight. You will learn learn different coping techniques as needed. It's possible that you might be asked to practice coping skills at home or journal in between sessions.
CBT for Migraines
I highly recommend a cognitive-behavioral (CBT) focused therapist with a warm, caring, person-centered approach. Cognitive behavioral therapy focuses on increasing awareness of learned distorted thinking patterns. Here you will learn new ways of challenging, reshaping and restructuring limiting thoughts to create helpful thinking patterns. This is how CBT for migraines can be an effective treatment to add to your arsenal.
CBT also teaches the inextricable connection between our thoughts, emotions and behaviors. This is how cognitive behavioral therapy can be helpful for chronic migraine.
Internal events (bodily sensations and physiological states i.e. tired, hungry) and external events (ranges from witnessing a car crash to being complimented) occur all the time, and our thoughts are rapid in response. Our thoughts shape our world without our consent. We feel emotions based on the thoughts we have, and then act out based on their combined fuel.
CBT for Vestibular Migraine Examples:
Dizziness (internal event) -> “Oh my gosh, not again." (thought) -> fear (emotion) -> panic, complain, go home, take medication (possible behaviors)
Your boss is concerned about the amount of days you've taken off (external event) -> "I should just quit, what's the point? I'll never be able to work normally again." (thought) -> despair (emotion) -> quit job, sleep all day (behavior).
As you can see, in the examples above, our thoughts can elicit emotions, and our emotions can prompt behaviors. Distorted, unhelpful and irrational thoughts often lead to ineffective and/or impulsive choices.
For the first example above, after learning CBT techniques, it might look like this instead:
Dizziness (internal event) -> "This is just a sensation. I am safe." -> neutral/calm (emotion) -> breathe slowly and rest as needed (behavior).
Therapy Resources That Explain
PsychologyToday.com is a great place to start when seeking therapy. You are able to filter your search based on location, specialty, accepted health insurance, among others. Do not be afraid to try out a few until you find the best connection and therapist for you.
You are important. You are human first. You are you first. And the right therapist will treat you as such.
- Kristi Ann DeName, LMHC, BCB, EMDR-II, B.S. University at Buffalo, M.S, Walden University
Tips Outside of CBT for Migraines
- Heal Your Headache Diet every day
- CBD oil in tincture and nasal spray form depending on need. I find the nasal spray helps more quickly with head pain, whereas the tincture helps calm the nervous system and can help with the motion sickness in the car when I’m a passenger.
- THC oil in vape form as needed for sleep and nausea.
- Light sensitivity glasses for days the world is brighter. I also use them when I’m using screens.
- EarPlanes for pressure changing days or situations (like altitude changes during any mode of transportation).
- Headache essential oil blend by Eden’s Garden for my forehead, temples and back of neck; Ginger essential oil by Eden’s Garden for my stomach when nauseated; and Vertigo essential oil for behind my ears and on wrists for dizziness.
- Stress management techniques.
- Gentle stretches and exercises.
- Vestibular therapy exercises - once a week for about 3 months.
- Neck, shoulder and upper back massages.
- Mental health therapy to deal with the frustrations and denial.
- Rest or sleep when in a full blown attack.
- Vitamin Supplements Daily: CoQ10, vitamin B2, magnesium glycinate, magnesium threonate, vitamin D3, etc.
- Knowing when to say “no” to invitations. I try to book only one obligation per weekend and cushion it with lighter activities and rest.
- Order groceries through Amazon Fresh to avoid grocery store triggers (side perk: saves time!).
- Seeking support from loved ones.
- Pushing myself through and still working, traveling and enjoying life - keeping my joy over my pain. Committing to these changes in order to increase and maintain a higher quality of life experience.
A huge thank you to Kristi for sharing her expertise and incorporating her personal story. You can connect with Kristi on Instagram (creativetherapy_withkristi) or through her website. If you loved this post, leave a note in the comments!
This post contains some affiliate links through which The Dizzy Cook, LLC will make a small percentage of profit on your order at no cost to you. Thanks for helping to support the ways I keep this site a free resource.
Barbara says
I want to say I enjoy your blog, recipes, and many suggestions. I use your cookbook and online recipes while following the Heal Your Headache diet for the last 6 months.
I have been dealing with Vestibular Migraine that started about two years ago. As yet I have not had a great deal of relief from any of the treatments, PT, or meds.Still working with my doctor on it, and often tell him of the suggestions found here. I live in Orange County, California, so any suggestions are welcome.
I continue to have bouts of lightheadedness and fuzzy brain most days. I was very interested in the CBT treatments I just read about.
Please keep sharing as you have, it gives hope that I can get some relief yet.
Alicia says
Hey Barbara, I think therapy is always a great idea when going through a chronic illness like this. Mindset can play a huge role in managing the anxiety with it and also recovery. Around your area I really like Dr Edward Cho at Cedars Sinai and I know he's got some great recommendations he sends patients too. That might be a good place to start.
Barbara says
Thank you so much. I am following your website and feel I have gained a great deal of insight to VM through you. Love your recipes.
I wish you well with whatever you are experiencing now.
Alicia says
Thank you, Barbara!
toni says
I just found you as I was researching what the best type of Magnesium I should take for my migraines. I'm so happy to have stumbled upon this blog and all your work. Thank you so much for doing all of this work. I feel like I finally have found people that understand what I'm going through.
Alicia says
Happy you found me too!! I hope you get some great tips. I share lots of new things on instagram too. 🙂
Nancy Shannon says
I am wondering about the comment to avoid things like grocery stores - i have been going through therapy and the one thing I have been told is to continue to expose myself to many of the visual triggers gradually so that I can eventually reset my brain/vision, etc. to adapt.
Claire Newman says
Hi Nancy,I'm guessing it's different for everyone but my physio has said that I should build up to doing things. If an activity makes me feel very unwell doing it then it will be counterproductive to try and push through. It will strengthen negative thought patterns and change the way I move my head etc. For me woods are a trigger, for example, and I was told to avoid them for now but maybe pop into a wooded area for 10 mins as part of my walks. The overall aim being to build up to different situations and build confidence whilst doing my physio exercises
Nancy Shannon says
Okay that is exactly what I was told. I just read the comment to mean to avoid by not doing these things gradually but instead staying away. I was told to keep moving as much as I can and if something, as you said, makes me ill then to slow it down. Most worrisome for me is I also have BPPV and arthritis of the neck. So I know I am to keep moving my neck but because I get BPPV so often I find myself holding my neck stiff so I don't shake down those crystals which will cause major issues for my movement down the road. So have to force myself to move it. Triple trouble with migraines, BPPV, and arthritis!!!!
Alicia says
Some exposure is definitely good! The key word you mentioned is "gradually". We're all a different level of what we can tolerate. For a lot of people, spending an hour at the store when it's crowded can be overexposure. So either limiting your time there and building up to it, or making accommodations on a bad day when your trigger load is full can be helpful.
Vivian Black says
You made a great point about how doing cognitive behavior therapy can be a great treatment for chronic migraines. My husband and I are looking for a behavioral therapist that can help him with his migraines he's been having for a while. We will keep these tips in mind as we search for a professional that can help us best.
Tammie Lynne Smith says
Thank you Alicia and Kristi!
I, too, was diagnosed in 2016 with Complex Chronic Migraine (meaning more than one type including vestibular) and bilateral Meniere's Disease. I was in an acute phase that had lasted nearly 18 months before a comprehensive diagnosis was compiled.
I had already learned that I had to be my own best advocate and health coordinator. The HYH diet, extensive physical and vestibular therapy, serious lifestyle changes to focus on complete health and wellness (supplements, regular sleep for starters), and good mental health habits have allowed me to move forward and re-engineer my life. Yes, permanent changes but all for the better. My life is once again fulfilling and there are few things I can't do. I do what I want but I know the consequences and I know how to care for myself both before and after the triggering event.
I enjoy the Dizzy Cook and am looking forward to tapping into Kristi's webpage for additional advice. Please feel free to contact me if I can provide ay encouraging or helpful information.
Alicia says
Thank you for your wonderful post! So happy to hear that adding in some of the things here have worked out so well for you too!