Have you ever just needed someone to say to you “I know exactly how you feel” when you’ve talked about your migraine symptoms?
Being diagnosed with vestibular migraine was incredibly isolating at first. I had never met anyone like myself who struggled with this same type of migraine. Sure a few coworkers had the occasional headache, but we still couldn’t relate to each other.
Finding a Migraine Buddy
In that period, I found so much hope reaching out to others online who experienced the same symptoms of dizziness, drop attacks, and walking on marshmallows. In fact some of my best vestibular migraine friends, like Kayla and Jennifer, were made through online groups like VeDA and Migraine Strong.
These migraine buddies became my lifeline for the first two years that I was going through some of my darkest moments. They understood exactly how it felt to dread grocery store runs, or to have a disabling vertigo attack where you’re terrified it will never stop. We shared supplements we were trying with each other and tested out new treatments. To this day, I always go straight to my migraine buddies first with any new treatments I’m thinking about trying or have a question on.
This is why I’ve decided to become a partner with Healthline for their new Migraine Healthline App. This new app basically covers every category you need like Navigating Healthcare, Alternative Therapies (my personal favorite), Migraine Triggers, Social Life with Migraine, Migraines at Work or School, and Medication and Treatments…and that’s just to name a few.
They even have a section called “Escape from Migraine” where people can share their pictures of sunsets, what they’ve made, or special moments enjoyed with family. This little section allows us to take a bit of a breather from focusing all the things we should be doing with migraine, and just take a moment to enjoy life.
Total Anonymity If You Need It
One thing that I think will be very important with this app is that it’s not attached to a Facebook profile like most support groups are. So if you’re one of those people that has a specific career where you don’t want your employer or someone else to know you struggle with this illness (sad, but this is SO common), this is a great alternative for you to still join a community. Everyone needs support and you shouldn’t be left out because of this. You can share as little or as much as you want about yourself when you set up your profile.
When you set up your profile, you can input facts about your condition – from what type of migraine you have to what your triggers and migraine frequency are. This can be used to find others in the group that may have a similar mindset to you in what treatments you have tried or what topics you’re interested in. From here you can either share publicly, or message each other privately in a 1:1 setting.
Another positive to the Migraine Healthline app is really a judgement-free zone. There are so many people on different paths, it allows you to connect with like minded people while also getting accurate information through helpful articles and a knowledgable moderator. Discovery pages and articles that share personal journeys with migraine are sprinkled throughout the app.
This is probably my favorite thing about the Migraine Healthline app, but I’m a little partial because I love the guide. If you’re a fan of the Migraine Strong group, Eileen hosts live chats each night with a new topic – everything from vent sessions to how everyone is managing the new teleconference appointments. Danielle also comes in to guest host chats every so often.
This upcoming week I’ll be hosting my first two live chats in the app:
- 5/18 at 5pm PST “Migraine elimination diet: what is it and how has it helped you?” in Diet & Migraine will be all about a migraine elimination diet where you can ask any question you have!
- 5/19 at 5pm PST “Exercise with migraine: how to incorporate it in your daily life, especially during S2B week” in Lifestyle will be about exercising with Migraine in support of Steps2Balance, which brings awareness to the challenges we face moving with vestibular migraine. I’ll share some of my tips and tricks for finding my balance and exercise routine with this
Every month they bring in “Migraine influencers” to share our experiences and chat about new topics so you can find a schedule of your favorites and mark your calendars!
I can’t wait to connect with you all in the app! You can download the FREE Migraine Healthline app here.
This post is sponsored by Migraine Healthline, a new app by Healthline that is made specifically for migraine patients to be able to connect. All opinions are my own.